Thank you for your replies

My MD has recommended a power chair and wheelchair van since before 2002. I had to buy a new car in 2002 and was adamant with the salesman that I needed the $1000 mobility allowance to put a carrier on the back of the car (I was borrowing my mother's power chair at times.)
After I purchased the car and was waiting for the program form as I had bugged them about the whole time...they informed me the car didn't meet the standards for accommodations.
My MD then began writing scripts for the chair and van---in 2003. It is now 12 years and still nothing. I'm needing another vehicle, I cannot afford one, much more one that is handicap equipped. And I'm still using my mother's old power chair and she died 6 years ago!

It took me several years to find someone to put a hitch carrier onto the car (illegal? because it's a front wheel drive)... and I did use that carrier for a short time, but it became too much. I would have to arrange the carrier to be put on on a day my PCA was here... but that didn't help me with loading the chair, strapping it in, bundling it up against road dirt and rain...and reversing it when I got to where I was going, and then again to return home and then once home! (Car won't fit into the garage with the chair and carrier).

I've cut back on my pain medication for 2 reasons, one, I'm not doing anything in life and two, if I manage my pain "well" then I want to go do things...and I can't so then I become depressed... it's almost better to suffer more pain and not want to do anything.

There is no family, friends, neighbors, nor church... those who might want to help are too poor themselves.

It wouldn't be so bad if worker comp wasn't supposed to provide this stuff.... you know?

I've even done planning (took me over a year) to figure out how to find a van I could live in...and outfit it. The Transit Cargo van is the least expensive and if I sell the house, the equity will pay for it, and if I sell the house I won't need the PCA anyway...b ad idea but... rock and a hard place... one of the final steps I had on my list was to check with the mobility upfitters to be sure they could make the van accommodate my needs. (I have to buy a van as a regular van and then pay out of pocket for upfitting---the finance companies won't finance a handicap van...they will only finance the usual van part and you pay cash for the rest of the van changes.) I only wanted a lift driver's chair as I had found a 3 screw weight lift ramp that wouldnt' void the warranty... for the chair. Well? The Ford company puts one of the batteries UNDER the driver's seat and even getting FORD to approve the upfitter, it will void the entire vehicle warranty. So after all that effort and almost excitement... nothing.

I need to miss another med time... wanting to do something again, for shame.