I have a generalized form of dystonia. I was prescribed clonazapam and baclofen. I understand the pain connected to this disorder. This year I decided to stop all my meds, and I will say it had some down time, was on it for at least 3 years. I just feel different without the meds. If you feel you can't do this see you Primary Care Doctor- they will have notes from the Neurologist. At minimum you need to have help with tapering or need another doc to prescribe the medications you need. You may want to contact the Dystonia Foundation or go to a Hospital that deals with neurological disorders. I am from Canada as well, and there are dystonia support groups, just go to the website. I understand the long waits to see a movement neurologist but its a good idea that you are followed.