Quote:
Originally Posted by amandalouise
angetwings you said in a post above...
They have all been officially diagnosed in my eyes. Just because the Lupus isn't officially in my file doesn't mean my doctor doesn't believe I have it. And the Fibromyalgia is officially diagnosed and it's in my file. It was diagnosed by a previous Rheumatologist.
just a bit of information you may not be aware of...
being diagnosed means its on the files.
anyone can believe they have anything, and any doctors can believe the person has something and thats ok.
I believe I have rhumatoid arthritis, my doctors say yes thats a possibility lets treat you for it. but its not on my files. why because I have not undergone all the diagnostic tests and the doctor has not placed it on my files.
what that means if if I tell people I have been diagnosed with this they can say no you havent, no matter how much I believe it and no matter how much my doctors believe I have it. I have not been diagnosed with it because I have not gone through the tests and its not on the list of what my diagnosis's are in my treatment files.
line in the sand right now its not a diagnosis its an ....assumption...with me, my treatment providers and legally.
now lets put this back in context of what you posted...you stated your doctors have not put it in the files but you believe and they believe you have these other mental and physical health problems...
guess what you can make these beliefs/assumptions that you and your treatment providers have about this into a diagnosis. example for lupus all you need to do is take a blood test. that will tell you and your doctors whether you have it or not. then it will be a diagnosis, not just a believe I have it kind of thing with you and your doctors.
hey heres a suggestion the program wants you to take a drug test right. well theres all kinds of drug tests. you can contact your treatment providers and tell them to add a test for lupus to a drug test that is done by blood work. or the next time you have to have blood work done to keep track of your medications ask them to test for lupus at the same time. one test and two things done at the same time.
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I mean you no disrespect Amandalouise, but being diagnosed with lupus is not that simple. There is not one test that they can give you that says "you have lupus". Lupus runs in my family. I have it my sister has it and my daughter has it. It can take years to get a lupus dx. One test they do is an ANA but even if that comes up positive it does not mean you have lupus. My ANA goes from positive to negative back to positive. It takes a lot to get a lupus dx and you really do not want it . Lupus has hit just about every organ I have and it's no fun either is fibro. If your doctor truly thinks you have fibro they would be trying to find you some relief.
You Angelwngs seem to jump from one dx to the next and if someone questions you about it you fly off the handle. This is a place to come and share information and to get support. No one wants to be yelled at or called names.