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Old Aug 12, 2015, 06:52 PM
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cakeladie cakeladie is offline
Magnate
 
Member Since: Mar 2015
Location: California
Posts: 2,024
Liz I worked with doctors who all knew I had lupus fibro RA etc. I had worked there for several years before I was dx. Has the years went by depending on my treatment I would miss work or if the kids got sick.

But they clearly saw me going down hill or you would have thought. My boss did. I went from walking to having to use a cane to a crutch. I even had one doctor think it was funny to hide my crutch.

I worked under ground so I had to walk up a flight of stairs cross a street to the parking lot. One day she left and she had hidden my crutch I could not get to my truck to get home. My boss was pissed. Someone went and got my truck for me.

That is the year I crashed and burned from lupus. I went from working one minute to having uncontrollable seizures. When my boss had to tell everyone I would be off for a while they were shocked. They claim now mind you these are doctors they never saw it coming. My boss said she shook her head and went into her office and closed her door. She also locked it so they would not pester her.

Here is the thing that I worry about. You can hide it real good and you can push yourself but then at some point you can crash and it's not pretty. I have been pushing myself swimming and today I could hardly take a shower. I took my shower and then had to lay down.

Please everyone take care and know your limits. And those who live alone keep in touch with someone a simple text that you are ok or no you need help.

Liz you are a very strong women. But you are human you need to take care of yourself and rest. Don't be afraid to ask for help or let someone know you are hurting. Don't make the mistakes I made.

Ok I am getting off my soap box now
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