I have a therapist, pdoc and support network. What keeps me feeling alone is that nobody in my “circle” really truly understands the thoughts and how pervasive they are. I tell them about them, but I just don’t “get it.” My boyfriend and friends want me to get better and stay better—they don’t understand the chronic nature of this illness. My therapist and pdoc listen and I think they know what I am talking about but its like they are not in my head—they can’t experience the thoughts I have—nobody can.

Thanks for writing…I know you have had a similar experience. Maybe I am frustrated right now, because the people who are close to me are taking on the attitude that I should be “over it” by now. I’d like to be over it by now too, but that is just not happening.