I used to be so busy, so scheduled. But I fall in a hole with regularity now. I have basic daily routine but even that is overwhelming on a bad day.

I don't understand why when I am so Ill everybody tells me to rest. Doctors tell me to stop working, socialising outside of the home etc just rest.

I float in illness til it passes. Otherwise I just scream at the thought of something as simple as getting a drink or colouring in.

I don't know why I am told to rest while others are told to keep busy. I know I am much weaker.