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Old Nov 05, 2015, 07:21 PM
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cashart10 cashart10 is offline
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Member Since: Oct 2013
Location: KY
Posts: 3,667
Quote:
Originally Posted by BeyondtheRainbow View Post
Please be careful with the clozaril. If you feel anything weird with your heart or blood pressure it needs checked out. Like I said, my pdoc is very adamant that the "major" interaction is a big deal. But I'm not on abilify so maybe it's different. I know she will not do "major" interactions I think ever but maybe that's because my history with meds is so bad. I don't think that's the reason but I've never asked specifically I guess. Just maybe have a low threshold for concern maybe?

If your pdoc didn't want you to bother him you wouldn't have his contact information. They know when they give that out which patients are going to need to use it. I do think that he should be more responsive or tell you to contact him another way (when my pdoc was getting chemotherapy and radiation I knew that she wasn't going to be answering emails as often and that I needed to call her secretary). But trying to get help for yourself using information he gave you is definitely not nagging. If you looked up his information yourself and kept calling him THAT would be a problem but you didn't so you are fine and are just doubting yourself.

Like others have said when he is being willing to keep you out of the hospital when even you feel you need to be there (and I thought he's always said that was when he would send you?) I think you need to be ready to decide to go in anyway if you need to. Ultimately only you can decide when this is necessary; he isn't in your head. So if you feel in danger you need to go and let the hospital figure out whether you should stay.

I hope the clozaril works for you. Just please be careful with it. It apparently is a drug that you only get one chance; if you stop it it's unlikely to work a 2nd time (from anecdotal reading) and so I think you have to have the support in place to make sure it works the first time.

Also please be careful with that starting dose. I thought 20 sounded high so I looked it up and this is what I found:
I'm just so confused I want to cry. Thank you, love. I have no idea what I'm doing but I hope it works like so many say it will. I will make it through like I always do, I guess. And yes, he always asks if I need to go in and asks me if it's time. I always thought a yes answer would mean it's time. Maybe because I said "I'm not sure if I'm safe or not" he didn't concede. To be honest, once I mentioned that my family wanted me to go ahead and try the clozaril, there was no more mention of the hospital until I asked where I would go. I've had another bad day. I feel like calling my pdoc and telling him to eff off and I never cuss like that. He didn't even do anything wrong and I know it's the mania talking. But, still
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Every finger in the room is pointing at me
I want to spit in their faces then I get afraid of what that could bring
I got a bowling ball in my stomach I got a desert in my mouth
Figures that my courage would choose to sell out now

Tori Amos ~ Crucify

Dx: Schizoaffective Disorder
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