For me eating and drinking is a chore. I took my last antibiotic today and I still have to go to walmart to get stuff for our trip plus pack plus pack and clean out the kids room so they can be painted while we are gone.
I called in the last two prescriptions for the trip. I picked up 9 on Monday and some before that. I have to make sure my breathing machines are ready and cleaned real good for the trip.
I really wish we had a direct flight but nope we could not get one so we have to change planes which makes me nervous because they have to transfer my powerchair. I also wish I had my normal 2 days with no one bugging me when we get there but I will not have that. Since my uncle and grandmother are going it's going to be go go go from the time we get there. I will have a break the day they leave. They leave before us by a couple of days. The day they leave I am not leaving my bed.
I am thinking about going to the imagining place on Monday to get the reports. I will be able to tell what's going to happen next by reading the reports. Ifs it's bad and they say chemo I have to decide if I want that route.
It's been a tough week for me. 2 people one from this forum and one from another one both died and both had lupus. The one from the other forum had lupus plus she took a chemo drug called mexotrexate which ended up giving her pulmonary fibrous. I took mexotrexate and I now have pulmonary fibrous and have had it for the last few years. Add RA, fibro and some other things sometimes you just don't want to know what those reports say.
We will see. I want to thank you guys for letting me vent and all the hugs and advice you guys have given me. I am not going anywhere but sometimes people need to stop and tell the others in their lives thank you and show them that they are appreciated. And I appreciate each and everyone of you.
Take care and rest when you can.
Liz I wonder what I will come home to with the cats having the run of the house


