Liz I completely get what you are saying and if coming on this thread to vent helps you then it's fine. I wish I could still work. I wish I could go to the store when I want but I can't. I had another seizure today so I am stuttering.
It frustrates me to no end when someone is dx with lupus that they want to right away go on SSDI. It does not work that way. I worked along time with all of my illnesses until my body gave out.
Hang in there Liz.