Thank you. I had read this before but guess I needed some reassurance.
Tonight not shaking as much. Interesting thing, I only get nervous or shake when I go from a lying position to sitting (worse) and then to standing (the worse). My balance is sometimes all screwy...at one point, I was falling into walls, but the drs didn't seem to understand how falling over like this (without drinking or taking drugs) can make one anxious. God, help the mighty dumb (MD) hoomans
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One neuro thinks I have dysautonomia (one day fine, one day falling into walls) triggered by a virus or reactivation of EB (have very high titers of EB which I had at 20), another said MAV (painless migraine but with the vertigo; the differential on my MRI was "migraine syndrome" and I did have some bad headaches--not classic migraines but very painful--when younger.
Thanks again,
Anna
Quote:
Originally Posted by omegalamed
Anna, it takes about 4 weeks to get use to a medication for our system. You cannot judge how it is cause the body has to build up a tolerance to the meds. It works different in people. Just write down daily take notes of how it makes you feel, then when you can talk to your dr. about it. They can adjust it based on the side affects that are listed. I hope this helps. Good luck and tc
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