Quote:
Originally Posted by Gus1234U
i find that a request in writing for assistance with pain management or referral to a specialist/clinic works wonders with overwhelmed/uncaring docs. it always looks to them like the first step in a law-suit, and they are hasty to send you away with something to show for it.
i do know what you mean,,, some people just don't 'look like' they are suffering ... :O some get help at much lower levels of pain and impairment, and it's just one of those inexplicable things in life. i had an uncle with back pain who was always being called 'lazy' , because everyone else just worked with pain, somehow were able to tolerate it. i have a very high pain tolerance myself, but am developing the painful kind of neuropathy. i don't look forward to the meds they will try to give me for that~! some of them have a very high incidence of crippling side effects or even death~ :O
you might try the 'binaural beat' audio technology to increase your ability to tolerate the pain. (be sure to use stereo head phones when you listen.) i wish you the very best.  |
I have started a pain journal to document what's going on over time. I've been suffering for years and it's only getting worse. Maybe by keeping an ongoing log they'll realize how much it has affected my life. I will also try a written request; I don't know why I didn't think of that before! Thanks. I know I've had to submit written complaints to landlords and such, and those seem to get attention like nothing else.
I get it with regards to your uncle. I was really down on my mother for a long time, since all she seemed interested in doing was watching TV. She might have been suffering in silence for years. I will probably feel about about judging her for the rest of my life... especially since this seems to be like a karmic retribution for all that bad-mouthing. Judge not, 'lest ye be judged. This has given me a great chance to reframe family history: maybe family members who did little with their middle adulthood weren't just lazy, but instead suffering from something I've now inherited? I'm starting to think so.
As for binaureal recordings, I just found Kelly Howell and have tried a few of those. While they're playing, I do feel some relief, or at least some distraction. I had also discovered ASMR videos on YouTube, which really help with relaxation and sleep. But they're really no good to me when I have to be alert and running errands, unfortunately. The only pain medication I can get right now is over-the-counter, and I think I've either built up a tolerance from long use or I'm in so much pain that it doesn't work... or both. My primary care doctor has already said she can't prescribe narcotic painkillers (the clinic I go to serves a lot of really poor people, and lawmakers are terrified the poor will just sell their Percocet for something stronger... like the rich NEVER do that!)
Anyway, coping not one day at a time, but literally one second at a time. It's got to get better sometime. Thanks for the advice!