Hautemess,

Did I gather correctly from the previous post that your illness is Guillain-Barré syndrome?

I used to work as a physio, (physical therapist in American English) specialising in Neurology. I have worked with a few people with Guillain-Barré syndrome, (we had a cluster of people affected in our area). Its a most terrifying illnesses!

The prognosis is generally good, even though fatigue and other factors can set you back temporarily (you probably know all this so apologies if you do).

Many if not most people make a full recovery, though it can take months, sometimes stretching into a year or, for a few unlucky ones, a bit longer. Some people find that long term their coordination or fine motor skills and not quite as sharp as they were, due to the way the nerves remyelinate themselves, but this doesn't stop them leading almost as active life as they had before, maybe less sporting prowess and a tendency to fatigue, and a few do slightly less well longer term.
All the people I saw got back to walking (and I only saw them at an early stage while still in hospital). The one who did a little less well had a rare variant of the syndrome.

If you are not seeing a physical therapist and you feel you are not progressing as well as you should, it may be worth getting a review from one who specialises in neurological conditions and s/he will be able to guide you how to get the best recovery and prevent complications. They will have a better idea than a general doctor.

In the uk, a specialist physio will often monitor someone's recovery, and treat them when necessary for months after they have gone home from hospital, until they have made their recovery.

This is an extremely frustrating time for you, especially if your recovery is slower than you had hoped. I really hope you find you gradually take more steps forward and fewer backwards as time goes on.

I wish you the very best of luck.