thats how i've been feeling too for years
just have to keep fighting them i guess... research research research!!
try to educate yourself as much as possible i would say... dont obsess as much as i do though because it can make things worse, just read snippets here and there ..
that way when you are talking with them you can make your case and try to explain as best as possible, but in my experience it seems the doc might look at you like you know too much and are being too specific, dont know why thats a problem, but seems like they did that to me... just because i've tried to educate myself
hang in there man...