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Old Apr 02, 2016, 09:43 AM
ASDandEDSfluid's Avatar
ASDandEDSfluid ASDandEDSfluid is offline
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Member Since: Mar 2016
Location: south, UK
Posts: 7
Quote:
Originally Posted by EmptyInside22 View Post
I have been diagnosed with ME for a year and a half but been suffering more like 11 years.

I am also waiting to see rheumatologist the see whether i have EDS (hypermobility subtype) and/or fibro. I am constantly in a LOT of pain mostly in my joints and suffere regular dislocations in both my knees, my fingers and i think soon my right shoulder is going to go too.
my first diagnosis around 14yrs ago now was ME. its so frustrating. my left shoulder is completely unstable, i can put it in socket but it slips out almost immediately, has been like that for 2 years February now. I spent a lot of time mourning the life I expected to have xx
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Genderfluid (any pronouns)

Autism Spectrum Condition
Ehlers-Danlos Syndrome Hypermobility Type (3)
Anxiety
Depression
Dissociation
Borderline Personality Disorder (?)
complex PTSD
Chronic pain and Fatigue
Sensory, Digestive and Other disorders
IBS style symptoms (under investigation)

Also a mama of two and happily married.