I have a rate neurological disorder diagnosed I'm March of 2013 but has it much longer since 2009.
It's called stiff person syndrome and yes I have gone to forums about this so I'm going to end it there and say.
I'm afraid from this I'll be one day very incapacited like before but permanent and I fear not being in a relationship with someone that loves me because someday I'll need a care taker before I get old.
It's truly terrified me even though I hide it behind my confidence that I know I can control some of it but like forums and Dr's say it's inevitable on how severe mine is I'll be much more immobile and can't drive or work or anything much.
I fear it so much. I just want someone here now.
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