When I got my dx last year I too found a forum on it. And the exact same thing happened. I haven't been back. When I have a question I ask my doctor.

Almost everyone there was doom and gloom. Like you, mine is mild - for now. And I'm trying to keep it that way. I'm also trying to keep my emotions about it in check. There are days when I'm more depressed than others, and days where I'm better physically.

I get into a "survivor's guilt" frame of mind sometimes. Feeling guilty because I don't have it bad yet. But I have to get into gratitude quickly, or else I'll drag myself down the same road.

I had to leave when I started envisioning myself in bad shape, like half the people posting were. It was sooo depressing; I was in such fear of ending up like that quickly. Its hard to remind myself that most of them had had it for a number of years, and been dx'd before medical technology caught it early.

It may sound selfish of me, but I can get dragged down very quickly. I can have empathy for others, but I have to be grateful when I'm having good days, or else I'll fall into a pit of darkness. Its not always easy but I try to make the best of my good days and reach out when I'm having bad days and let people help.

My neurologist told me the best thing I could do for myself is not read stuff online. So I don't. I also have to be careful when people try to give me medical advice. All our bodies are different, so we all react to our illnesses differently. I have to keep my medical care between my doctor and myself and try not to let info on the net get me down. So I don't read about it online - at all. Unless its a fund drive for medical research.

I hope I don't sound cold in this post....I just wanted to let you know I understand.


Rayna