Update: All my new genetic testing came back negative so I went back to see the gynecologic oncologist. He STILL highly recommends surgery which surprised and scared me. I asked if he'd recommend it to a family member and he said yes. My risk is 5 -7%; the general population has a 2% risk of getting ovarian cancer. The reason he said more women are having their ovaries and tubes removed is, like I said before, there are no good screening tests and no cure for this cancer. I'm past menopause so at least I wouldn't have to worry about those effects of surgery. If I'm lucky it would be a laparoscopy but you never know.

This doctor was recommended by my internist and he has an excellent reputation. I liked him very much too. Even though the tests aren't useful, it's all there is, so I had a CA-125 blood test and am getting a pelvic ultrasound, which I get every year.

Of course I'm getting another opinion but I know it's ultimately my decision. I hate the idea of surgery but worse would be getting cancer and dying. This would never have come up if I hadn't seen a new gynecologist who said "most women like me get their ovaries out nowadays ." My Mom was a couple of years younger than I am now when she got oc. They didn't have genetic testing then.

My gut feeling is to have the surgery even though I'm scared and I hate pain! Has anyone had this kind of surgery?