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Old Jul 03, 2016, 07:04 PM
Anonymous50005
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Quote:
Originally Posted by rainbow8 View Post
Update: All my new genetic testing came back negative so I went back to see the gynecologic oncologist. He STILL highly recommends surgery which surprised and scared me. I asked if he'd recommend it to a family member and he said yes. My risk is 5 -7%; the general population has a 2% risk of getting ovarian cancer. The reason he said more women are having their ovaries and tubes removed is, like I said before, there are no good screening tests and no cure for this cancer. I'm past menopause so at least I wouldn't have to worry about those effects of surgery. If I'm lucky it would be a laparoscopy but you never know.

This doctor was recommended by my internist and he has an excellent reputation. I liked him very much too. Even though the tests aren't useful, it's all there is, so I had a CA-125 blood test and am getting a pelvic ultrasound, which I get every year.

Of course I'm getting another opinion but I know it's ultimately my decision. I hate the idea of surgery but worse would be getting cancer and dying. This would never have come up if I hadn't seen a new gynecologist who said "most women like me get their ovaries out nowadays ." My Mom was a couple of years younger than I am now when she got oc. They didn't have genetic testing then.

My gut feeling is to have the surgery even though I'm scared and I hate pain! Has anyone had this kind of surgery?
Do you have the cash to cover that kind of surgery since insurance is unlikely to cover it as it will be elective?