I have met people with conditions that resulted in them being stiff all over.
Just hadn't heard of sps - so did a quick search, and found info and these (don't know if they are up-to-date):

• Living With Stiff Person Syndrome
  • Phone: (904) 375-9385
  • Email: debbie@livingwithsps.com
  • Website: http://www.livingwithsps.com/index.html
• Movement Disorder Society
  • 555 E. Wells Street
  • Suite 1100
  • Milwaukee, WI 53202-3823
  • Phone: (414) 276-2145
  • Email: info@movementdisorders.org
  • Website: International Parkinson and Movement Disorder Society
• NIH/National Institute of Neurological Disorders and Stroke
  • P.O. Box 5801
  • Bethesda, MD 20824
  • Phone: (301) 496-5751
  • Toll-free: (800) 352-9424
  • Website: National Institute of Neurological Disorders and Stroke (NINDS)
• Stiff Man Syndrome Support group
  • 75 Normandy Avenue
  • East Yorkshire, HU17 8PF United Kingdom
  • Phone: (148) 286-8881
  • Email: liz.blows@smssupportgroup.co.uk
  • Website: SPS Support Group UK and Ireland.