So sorry you are suffering so much at times. My diagnoses's are Bipolar 1, PTSD, Fibromyalgia and Chronic Fatigue Syndrome. They certainly feed off each other. The extreme fatigue and pain can drive me into SI too but I don't have the level of pain you have so I cannot imagine how you handle it at all. My pain only goes to a 7/10 at worst. I use Tramadol at those times as nothing else helps. For me the fatigue crushes me more emotionally as I feel my life becomes pointless. It often happens outside an episode but when depressed it can get worse. I am lucky that when I am manic my pain and fatigue disappears. I LOVE life as I feel free in so many ways. Of course the crash is bad.
Sorry, I don't really have any hints or tips. I am sure you are aware of all I know. How long have you had the pain? Mine hit me around 2000 and finally I feel I am getting better control of it. Drugs have not really helped but paced exercise, diet, getting as much stress out of may life as I can (one ex-husband down helped a lot with that) and swimming in the ocean. 7 years ago I could not even walk 1600ft to the beach and now I can walk for 45minutes at a fast pace 3 x a week. I can also swim longer. Somehow, I got lucky and was able to reduce my pain and fatigue to less often and many times to a lesser degree. Still, I have weeks where I am crippled but it happens less. I wish the same for you. It seems you are suffering much more than me. HUGS!!!
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Bipolar 1 with psychotic features
PTSD
"Phew! For a minute there I lost myself."
'Karma Police' by Radiohead
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