Up until a few years ago I knew everything about every med I took and I wouldn't take meds until I knew about it. Since I worked in healthcare I had a lot of exposure to meds anyway (and I worked in psych for years which gave me even more exposure to things I'd eventually take....this was bad sometimes because of things like the pdoc where I worked used Seroquel to snow everyone. Consequently I refused to take Seroquel when in reality it worked quite well for me without being even close to the most sedating med I've taken. I may have lost years of working to that.). But knowing was important.

Then in 2011 I became very suicidal and my pdoc and therapist were very concerned because I knew what was now too much to be safe. So from then on I've been asked to not read drug profiles. By now I'm ok to do so but am not allowed to read the parts about overdoses and never will be. But mostly since that time (and now during bad times) the plan is that my pdoc promises to tell me everything I need to know and answer my questions and my therapist will look up and answer questions as well without sharing the entire profile with me. So I had to give up a little control but I still have access to the most important stuff, which lets me find out "did my kidney stones happen because of clozaril?" etc.

could your husband or pdoc be your "information keeper" and answer your questions but not give you a (ok, fine, I'll type what first came to mind because it's kind of funny and Freudian) an overdose of information?

PS I'm so sorry you and your son went through so much.