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Originally Posted by healed84
Interesting that if she has an official dx on ASD even from an outside therapist that the school has to do their own testing, to add that to her IEP. My son's dx were all made by a psychologist in my T's practice that he works with, with an official letter of diagnosis with recommendations for the classroom. So, when I was going to send him to public school (we ended up not going there) all they needed was that letter and they had an IEP meeting based on that and my recommendations. I hope it all works out for you and her!!
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Thanks for sharing your experience and for the good wishes! I think we had the option to add the diagnosis to her file at school, but I believe the IEP would still have said developmental delay instead of autism.
She failed the ADOS when she was 2 (almost 3--I think?), but I feel like that wasn't a good test because they had her in this small room for 2 hours (did language testing at same time) and she just wanted out of there. Plus I think with her language delay, she didn't understand some of the questions. Near the end, she was so ready to get out of there that in the birthday party portion of the ADOS, she was hitting the doll in the face and saying, "Don't hit the baby." At that point, I was like, "preeeetttty sure she failed."
Her developmental pediatrician remained unsure for a couple years, saying might be language delay plus ADHD and/or anxiety. Saying we should let her language catch up then reevaluate her. But then maybe a year ago, she was like, "Well, ASD is probably the best explanation, so let's go with that." So part of why I want the school to do the testing is also to see what they come up with. This way, she's being tested by people she works with regularly, in 15-minute chunks as part of her regular day.
Based on how things went in the interview with the psychologist, which involved her asking questions from a book, then scoring her in various areas based on our responses, she seemed somewhat borderline (like it was usually the in-between option). But we didn't get all the way through the booklet in the 1:45 she had, so we have to go back in a week or two.
Is your son in a private school or home-schooled? How old is he? (feel free to PM, if you'd rather discuss there).