Sounds like you need to find yourself a good GP and / or gynacologist.
You know... My symptoms aren't as bad as yours admittedly, but I was getting pretty upset with doctors fairly much laughing at me too. I was really embarrassed about the facial hair in particular. They would be like 'well I don't see any facial hair' and I was like 'yeah, thats because I spend about twenty every morning checking over my body and removing it all by plucking it out'. They said it was cosmetic and I should save some money for electrolysis if it bugged me and that I looked slightly Italian and Italian women were hairy (this coming from a male chinese doctor who clearly had no sympathy since he looked like he didn't even need to shave). They said my acne was 'mild' and 'cosmetic' too.
Grr
Grr
GRR.
Female doctors tend to be much more sympathetic. Especially ones who might be a little 'cuddly' themselves (PCOS and milder varients are VERY common in females and a leading cause of infertility. As such, you would expect that some female docs would have this condition and really read up on it and thus have more knowledge and sympathy for fellow sufferers).
> last time they did a blood test my testosterone was high
Then it sounds like Estelle (or similar) - basically a pill that REDUCES testosterone is what you need. Not all contraceptive pills do this - it is only some that do. And... The pills (like Estelle and varients) actually aren't supposed to be marketed as contraceptives. Contraception is a SIDE EFFECT of their reducing testosterone.
> they told me to go on a diet and wash my face.
Acne isn't caused by poor hygene. In fact... One should be careful not to over-scrub acne with harsh abrasive heavily fragrenced soaps etc. Acne is always hormonal.
There is controversy over whether the weight causes the PCOS or whether the PCOS causes the weight gain. They think that there is a reciprocal relationship, basically. Losing weight is a way of managing the symptoms. E.g., I got told that I'm really lucky that I'm within normal weight but if I get any heavier I could expect to develop full blown PCOS symptoms and I'd probably lose my fertility. I have a friend with PCOS who lost some weight (because she was severely stressed for a time and basically stopped eating). She forgot to take her pill properly... She didn't think it would matter for contraception since they told her she would never be able to conceive. She conceived during that time. She ended up miscarrying... But the point is that the reduction in weight increased her fertility.
But the main problem is that the PCOS does go some way towards CAUSING the increased weight. My friend is a health freak. Lives off steamed vegetables and stuff like that. Doesn't drink. Exercises a lot. Her body is toned to be sure, but she is still clinically obese (though she is a little person too so BMI isn't an accurate indicator for her). She does look like she is 'fatter' than me, though, which is TOTALLY UNFAIR because I don't eat well and I don't exercise and I drink a lot of beer.
Apparently... It goes like this:
- Insulun intolerance (so carbohydrate craving and much increased risk of diabetes) Basically... Your body is sending out this strong signal: THERE IS A FAMINE ON SO WE BETTER STOCKPILE FOOD NOW OR WE WILL LOSE OUR FERTILITY AND DIE!!! SO EAT CARBS!!! EAT CARBS!!! And your body tries to turn calories into fat as much as possible (instead of your metabolism just burning the frigging energy already)
- That causes an increase in the production of androgen in the ovaries
- That causes the symptoms of PCOS
Now, of course, if there REALLY WAS A FAMINE ON then around the time that the other people would be losing their fertility you would be maximally fertile. So... We are the 'famine queens' (so to speak) :-)
There are treatments that intervene on the INSULUN which (might) help with the weight AND with the down stream effects. It really would be worth talking to a sympathetic doc about this.
> im worried that if they dont take care of this soon that my body will be so messed up that when i do want to get pregnant it wont happen.
Yes. Please can you try and find a sympathetic doctor? Do you have any female friends who can reccomend someone? Could you try and find someone local via internet or something? Or could you find information about local doctors at their practices (e.g., sometimes there are little blurbs available on their main interests. You want to find someone who is sympathetic to 'womens problems')
PS - Starving yourself is NOT RECCOMENDED as a way of trying to increase your fertility. That is because of the significant risk of BIRTH DEFECTS as the mother and infant are nutritionally deprived
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