Hello breakachilles: I'm sorry I don't really know anything about this. But I noticed this is your first post here on PC. So... to PsychCentral… from the Skeezyks! May the time you spend here be of benefit.

I wondered if you are familiar with PsychCentral's sister website: NeuroTalk. There are a lot of members there who are quite knowledgeable with regard to many different physical / medical conditions. You might also take a look at the forums over there & see if NT might be of benefit:

https://www.neurotalk.org/