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Old Feb 18, 2017, 01:08 AM
yagr yagr is offline
Poohbah
 
Member Since: Nov 2015
Location: spokane
Posts: 1,459
I had my SSDI hearing in front of a judge back in September and received my denial a few weeks ago. I've been trying to get it for almost four years now. Anyway, just pointing out that I have a bit of experience with this particular issue and yeah, I found questions like the one you quoted, incredibly frustrating. I could not answer it in a way that I was comfortable with. Personally, I had to make something up that might approximate my experience. For instance:

Quote:
describe what you do from the time you wake up until going to bed.
Well, I usually wake up sometime between 3am and 9am - not always, but usually. The reason I wake up is always the same though - pain. The longer I sleep, the more it feels like someone has been beating my kidneys with a two by four all night until just the act of breathing and my lungs pushing against my kidneys is enough to take my breath away. So, I make my way to the couch - sometimes walking, sometimes crawling, and gingerly take shallow breaths for one to three hours until the pain subsides enough that breathing no longer hurts. If I woke up at 3am, then I'm usually laying back down about 5am. If I woke after 6am, then I'm usually up for a while.

There is no 'normal' - no 'routine'. Some days I can take a shower - many days I can't. Some days I can get something to eat for myself - many days I can't. Some days I'm not able to stay awake for more than an hour or two at a time - and during the time that I am awake I am all but catatonic; other days, like today, I can actually post something.

I am sorry that you've been denied and I hope for the best for you during this next stage - truly I do, but it can be very difficult. I have chronic heart disease, chronic kidney disease, chronic liver disease, myasthenia gravis (a rare auto-immune disease), hypertension, DID, etc., etc., etc. My primary care physician has said, and written a letter to disability, that I cannot work. My T has done the same. My neurologist has done the same. Still denied.
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