Unfortunately, I'm just a random person that's clicking around the site at 2am. I really wish I could offer you some appropriate advice and suggestions, but I have no experience in this realm whatsoever :/
However! If no one else replies or contacts you (or if you just want to talk), I don't mind helping you look up different conditions/treatments if you think it would help. I apologize for not really having anything better to offer ;-;
I wish you the best! Hopefully you can find something that works for you