I am so sorry Yismymindisblank,it sounds awful to be going through such a horrible condition and not know what the future holds.I recently went through a cancer scare myself and not knowing if I was going to die and knowing death from cancer is slow and painful,I had the great deal of fear over it and the shock of it too ,the fear is the worst thing and the not knowing if death will be soon or far into the future and also being alone with it all.I don't think anything is quite so hard as it is when we are facing it alone.
When we have others to listen ,understand and comfort us it becomes doable.even if it is still difficult but without support and reassurance it is almost impossible to bear.

I am sorry,I can only think to suggest if there is a support group for your condition within travel distance or ask a family member to help?
It is horrible to have a therapist that doesn't care,do you think it is better to find one who does care and stop giving your money to one who don't?

I only hope that somehow you find the right support for yourself ,it can be harder without that is sure.