I have not received this diagnosis but it sounds like it's similar to the ice pick headaches I get mainly on my left temple and eye. It's so terribly painful and feels like I'm being stabbed over and over and over through my temple or eye. It's a pain like no other. I have moist heating packs I place over my face and it sometimes helps. I am so sorry you hear you have this constantly....I can't even imagine. What medicine do you take to treat it and how effective is it? Is it a preventative? I hope you figure out the med situation. (((Hugs)))