Oh wow, Emily, that all sounds *awful*.
I don't have any answers. I'm only a couple years younger than you (43) - and I think I'm starting, a little (I've had some wackiness with my normally on-time period, and I'm hot a lot more often, and sweating more at night). I hate the thought that it's going to get worse.
I guess the doctors didn't find anything when they did the test? Have you talked to anyone who can maybe look at your hormones (I don't know if hormone disruptions can cause those symptoms, but it's worth asking about, maybe?)
I'm so sorry. I hope things get better soon for you.