I'm glad you shared your experiences and know that you have a safe place to vent. I also understand that same frustration too well. You are already do this, but keep going.
I finally have the help I need and it took from March 2014 to January if this year to get it. It's taken 6 months to get stable within the current arrangement and I wouldn't be surprised if there were more bumps along the way.
I am so glad you know your body well and know what you need- that is half the battle won.
Keep going, keep posting. One day at a time.