I completely get what you're saying.....I think. I know with me, my "good days" are the ones where I manage to put a mask on so people around me dont notice my symptoms. However, just because they don't notice them, does NOT mean I'm not still dealing with them, struggling to push them down. It's exhausting! So then on my "bad days" people notice my symptoms and think that it's just some rare flare-up or something and act like I should be able to maintain my cool during those "rare bad days". WRONG! Every day is a battle, and sometimes you win and sometimes you lose. It's frustrating because you try to put the best version of you out there, but you know that the real you is sick and hurt....and having somebody say "you haven't been yourself"...it's like... grrr no, actually I AM finally being my real self and that person needs a break because I've been pushed to my limits trying to maintain the "me" that I've let you see. Does that make sense? At least for me, it's very frustrating and I tend to get resentful and feel unappreciated by the people who just don't get it.... But on the positive side... at least you know they weren't TRYING to be hurtful.