You said you are getting up and are still very tired. Are you not sleeping well or enough hours? It's scary, isn't it? Symptoms and not knowing what is really going on. I hate going to the doctor myself and I feel something different and struggle with keeping my sanity until I find out what is going on.

It sucks but once you do know what is going on, you can learn how to manage it best. Bless your heart! You have a lot going on, don't you?