why are you being taken cold turkey off of tegretol which is an anti seizure med? for that matter why cold turkey off of elevil? I have always heard that they should be weaned off of never taken off cold turkey. Going cold turkey of of Anti seizure drugs can actually cause seizures.
The emg/ncs isnt that bad , i have had 4 of them, but you can ask for test for small fiber neuropathy before that that are not painful at all. QSART and QST ( qualitative sensory testing) and a sweat test are used for that as well as sometimes a tilt table. Diabetes usually causes small fiber neuropathy.
It is advisable to try to find a cause for your PN as that might lead to better treatment results. IN your case i would make sure my sugar levels are under strict control.
Ask your doctor why you have to come off cold turkey, i dont really understand that.
I have had PN for over 6 years now by the way. Mine is from toxins.
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