Like Rose76 and BeyondTheRainbow said, documentation is key. Write down the symptoms, their duration, how often they happen, what he does to alleviate symptoms, what makes them worse. Keep a record of appointments, as well as any calls to healthcare providers and tests. Keep the documentation together. Use your phone to jot down stuff so you don't forget. It sounds like a pain in the posterior, but once you get the initial organization started, it'll get easier. I hope this made sense. I'm still dealing with a sleep deficit.