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Originally Posted by catztac
AKA psychogenic non-epileptic seizures.
I had my first seizure at work in October 2016. I woke up to paramedics around me and nervous coworkers. I spent a couple days in the hospital and had a battery of tests that showed nothing. Well, nothing to indicate seizures, I do have a spot of atrophy or damaged brain or something from long ago and far away events which is interesting.
These seizures kept happening maybe once a month, then once every few weeks, then by June/July one at least every week. I banged my head during at least half of them, needed sutures in my forehead once.
In August I was admitted to the seizure observation unit. They hooked up 27 electrodes to my head and pointed a video camera at me in my room. It took a few days for me to have a seizure for them, but finally I did.
The EEG showed no abnormal activity whatsoever. So the diagnosis; psychogenic non-epileptic seizures. They explained that people who experience these often have a history of trauma (me!!)
I wish it was true epilepsy, that can be treated and life goes on. This though? They can't even say exactly it is that I need to change about my behavior or coping strategies or anything to make them stop. It's so vague.
I feel like this is yet another way that my brain is working to sabotage me. My manipulative, atypical brain.
I feel like I might never be able to do so many things if I can't get this under control. Travel Europe, have/raise kids, have different careers.
I dunno.
I thought I knew what my different mental illnesses meant for my life, but now new stuff. What more will I loose??
I guess I'm really into a self pity spiral right now, but seriously, why me??
Why always me??
What the hell?
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Have you been able to determine any kind of triggers for these episodes? Do they always happen a work? Or a wide variety of places?
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"Do you know what’s really scary? You want to forget something. Totally wipe it off your mind. But you never can. It can’t go away, you see. And… and it follows you around like a ghost."
~ A Tale of Two Sisters (Janghwa, Hongryeon) (2003)
"I feel like an outsider, and I always will feel like one. I’ve always felt that I wasn’t a member of any particular group."
~ Anne Rice
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