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Old Oct 06, 2017, 08:13 PM
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cakeladie cakeladie is offline
Magnate
 
Member Since: Mar 2015
Location: California
Posts: 2,024
Not sure where to start.

Kiya are you ok? I know I haven't been on much but I miss you and I hope everything is ok.

Liz you to I hope you are doing better. I heard Florida is to get hit again. I am sorry for all the work you have to do. The pain must be outrageous
F
Gus just love love love your pictures they bring a smile to my face

For the new people Hi and welcome. This is a pretty tight group of people. No one on here judges anyone

Jan I am sorry for everything you are going through. I hope you got your apartment back in order. I have been trying to declutter and wish Christina was here to help . Keep us posted on what's going on. Also if you are having trouble getting someone to take you to appointments there are solutions out there and we can work together to find them.

Christina my heart just breaks for you. I know you are pretty non verbal right now just know we love you and if you need anything reach out to someone we are here for you.

Now not sure I said this before but since someone posted it I am going to bring it up again. Mexotrexate destroyed my life. I was on it for years and because of that it has damaged my lungs and my liver. Did it help me yes. I would have 2-3 good days and 4really bad days. The issues did not show up in lab test. They way they found it in my lungs was because I got a cough. My pulmonary doctor was out of town so my rhemy ordered s CT with contrast. It was summer time and my rhemy cuts her hours in summer time due to the fact that she had school aged kids. 2 months later I asked about the test and she was shocked. I had to go in and not get one but 2 CT scans STAT. Then I had to have an ultra sound of my liver. It's not good and the doctor said it was all mexotrexates fault so please please be very careful.

Well my meds are starting to kick in so I best sign off for now.

Sending positive vibes and hugs to everyone
__________________
Hugs from:
January, Kiya, lizardlady, spondiferous, Wild Coyote, ~Christina
Thanks for this!
Gus1234U, January, Kiya, spondiferous, Wild Coyote, ~Christina