Quote:
Originally Posted by Beautifulmadness78
Thank you for the response. I also went to college , I have 2 degrees. Ive had over 50 jobs in my life. My illness has made me so unreliable as i don't know how i will feel when i wake each morning, not to mention able to get dressed and leave the house. I do get up at 6 with my boys and cook breakfast, get them on the bus. Then usually just to go back to sleep because i'm still groggy from the meds i take a bedtime. I don't know, every day i feel lost. I got disability when i was only 28. Im a single mom , live in low income housing. what sucks the most is my 17 year old son always says mom why can't you go to work like all my friends moms and then we could actually have a real house and not an apartment ? Or he will say why are you so lazy ? ugh, if only he understood. Its hard to explain to a 17 year old boy who thinks his mom is crazy....i have to go for now , shower and do a 2 hour shift , that i dread but i must do it. Christmas is coming. It's pretty sad that most people work 40 hours a week and i have all i can do to work a 2 hour shift helping and elderly lady with personal care once or twice a week. To the other lady who replied, I'll get back to you as i don't have time right now. Thank you both for responding and understanding.  |
I am so sorry you are dealing with this now, it's a especially hard when you wish your kids could understand. But there is no way they can.
. Maybe over time, as he gets older, he will learn to understand more.
I have to sometimes remind myself that this is no different from being confined to a wheelchair. You still can do things in your life, with limitations, but no one can "see" our disability, which makes it so much easier to be misunderstood.
Do you have rapid cycling? It's so hard to plan anything when you don't know how you will be from one minute to the other. That gets me too, how unreliable I am, which is why I don't know if I am truly capable of working outside the home. I am frustrated that my rapid cycling can't get under control. I have gone from upbeat, to anger, to crying endlessly in the course of the last 6 hours. And at the moment I'm actually coherent. But sad. Sad that we all have to go through these things. I wish I knew how to help, but I do understand.
