I know it is so difficult when just everyday tasks take monumental effort. When "normal" takes half a day to complete. And then there are times when getting out of bed doesn't happen.

I just love when my sister says "do just one thing everyday", like I don't know the drill. I'd like her to spend 24 hours inside my body and say the same thing.

I've felt that anger at myself because everyone around me is leading an active, productive life and I'm lucky if I do anything but sit on the sofa and stare into space all day.

They want to understand. They try, really try to help. But unless you have lived it their kind hearted attempts are feeble at best.

If it helps to know there are others like you. I know exactly what you are going through.