Yes! I am struggling to cope. I feel hands scratching, clawing, pulling, pinching, and almost anything else you can imagine in reguard to touch. This began for me 11yrs ago after being struck by lightning. My life has been destroyed and empathy is hard come. Meds have not worked. Btw, I feel excruciating pain as well. I ask God all of the time to take me home. I do not understand why I survived for this. People tell me things could be worse. What could be worse than ALWAYS feeling that you are being tormented with touch at all times by something you cannot see, and NOTHING stops it?
My Doctor is now telling me that the stress of it is going to kill me as my cortisol levels are high, my blood pressure has gone through the roof with meds, I've developed diabetes, and gained weight.
I use to cope by telling myself that this was temporary. I can't believe that now. It's been 11yrs. I don't want to live like this. I cry often because it's sooo horrible. On top of this, my husband was diagnosed with cancer on 2012. He is also a survivor. But, I see him suffering everyday from the surgeries. His colon and rectum were removed. No colostomy bag though. I just don't know how to cope.