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Originally Posted by tecomsin
Hey WC, glad that Bird Feeder has jumped into this with personal experience and a good outcome. I'm also one of those people who thinks a lot about long term side effects and quality of life... that many people give psych meds kind of a free pass where if they had to live with the side effects themselves they might not.
Google scholar says that ECT is about %70 effective in bipolar depression. The side effects vary a lot. If I were in your shoes I'd seriously look at figuring out a med cocktail that isn't feeding dystonia. I mean I'd ask myself if I well and truly needed each med and eliminate one at a time. I don't know what you are taking and you may have already done that but in case not it is worth mentioning that meds can be reduced, dropped and switched.
I've got my headaches and weird neurological problems that kind of puts me off the idea of ECT plus my memory is already terrible and wouldn't want it worse and I don't have prominent tardive, dystonia or dyskenia at the moment but if I did I'd be switching meds.
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I am at a dead-end with meds.
I have tried al kinds of cocktails for over 30 years. This pdoc has been with me for 20 years and we have exhausted everything over and over again. the meds which used to work somewhat now give me dystonia. More than just the AP meds give me dystonia. I've had a lot of exposure to all kinds of meds over the 30 years, trying to treat severe atypical treatment-resistant depression.
I am tapering Abilify in hopes of finding a low dose which does not cause overt dystonia; yet, I get a lot of muscle twitching and myoclonic jerking at 2mg and 4 mg. It does not look like low-dose Abilify is going to be safe for me. We will see, still tapering that med.
Thanks for all of your thoughts/suggestions.

WC