I am sorry you go through this. I can relate. CFS/CFIDS, Fibromyalgia, Psoriatic Arthritis, migraines and Myotonic Dystrophy, Thyroid, etc.
I have been taking Adderall to try to function during the day. Temazepam at night.
I want to sleep/rest 24/7.
I hope you find answers.

WC