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Old Mar 03, 2018, 09:30 AM
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direkat direkat is offline
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Member Since: Feb 2018
Location: Oklahoma
Posts: 49
Quote:
Originally Posted by seesaw View Post
I understand everything you're saying. Invisible disabilities are extremely difficult for people to understand. I have a service dog, and strangers will interrogate me and berate me all the time because they don't SEE a disability. I've gotten to the point where I tell them it's none of their business and very rude of them to ask a stranger about their medical history. They usually look miffed but rebutted and walk away.

I understand exactly what you're feeling though. I have dealt with this issue with my family. My mom and stepdad sort of understand how it is for me and how I just shutdown or worse meltdown when my PTSD episodes start. My dad is in denial, thinks I just want attention. Like a person needing support and attention is such a bad thing.

Yeah, people have no idea how strong you have to be just to survive with these disorders, telling us to just stay strong and we'll get better? Right...It's been 4 years since my disability diagnosis...about 10 since my initial diagnosis of panic disorder. It has taken that long, with serious effort and pushing on my part and lots of hospitalizations, residential treatment, IOPs, PHPs, my own research and education, therapy, and meds for me to even get to the point of stability I'm at today.

So, you're not alone. The best I can do, which I do from time to time, is be vocal about what it's like for me on my social media. I've learned to be unafraid of the stigma and share my story (not all the gory details but aspects of it) to educate others. It has helped. At least among my peer group and colleagues.

Seesaw
It's just awful! Because you have to! You have to research and educate yourself on it all and fight with people over it. You have to fight for your life with everyone if you're not visibly dying or you WILL die. The only time I started to get 'real help' was when it got so bad that I broke completely apart and ended up in the hospital because I was that bad, and it was like before then no one really thought I was that bad no matter what I said to them because I didn't really know which symptoms I was experiencing that were 'odd' or 'abnormal' and I didn't know how to convey the seriousness of anything because I was so confused all the time. I literally went to the ER for suicidal thoughts with a plan, (multiple plans actually) and the guy sent me home because I was drunk and on antidepressants and he told me they counteract and to quit drinking and I'd be fine. And then the guy in the psychiatric ward told us we were there because we were being punished and we needed to learn how to behave ourselves!!!

It makes me determined to get better enough to shout it out at people. To make it my mission in life to force these people to stare this ugliness in the face and validate it. To quit turning a blind eye and passing judgement on things they don't understand. I'm determined to make myself heard on this somehow, I can't handle that this is the world we live in. I won't accept it.
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Bi-Polar 1, C-PTSD, BPD, AUD

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Thanks for this!
KYWoman, mote.of.soul, seesaw