I understand the feeling.

I live in the US and get my benefits from the VA and even now, 23 years later it is a worry. I have been through about 5 reviews in that time, every time resulted in an increase or at least kept things the same. The last time they maxed me out(a huge deal in regards to extended benefits and a huge increase in $$$ - from almost above poverty level to above average working income, at least for my area) and labeled me as permanent. They aren't even going to look at me again, unless for some odd reason, I initiate it.

You would think that would stop that worry, but nope. I go online every month and check that I am still rated 100%. Like most things, it seems like distracting oneself from the process is about all one can do. Since I check once a month, I guess it is hard to distract constantly.

At least you got over the 'does this person really have a disability' hurdle, that seems to be the biggest one for any disability system I have heard of. I think the best defense to getting lowered or kicked off it is continuing treatment records. I had 15 years between my last review and the one before it and those records said more than I could ever say.