I am also sorry you are all in this position.
A psychiatrist has repeatedly told me that although they cannot talk, they can listen. In a situation similar to yours, I was told to get to the doctor's voicemail and talk away, telling the doctor what I'd felt he'd needed to know.
If you don't know the name of your son's doctor, call the nursing station and tell them the information you've wanted to share.
Other than doing something like this for the immediate situation, I am afraid you'll have to go through the courts. Lots of helpful advice in above posts.
My heart goes out to you.

WC