It seems that among the bevy of special skills one needs to develop in order to negotiate this particular realm of illness, along with whatever support systems exist to help, the most valuable are determination, tenacity & a finely tuned mind to catch every detail of the processes before you.

Sadly, those are exactly the skills that the illness tends to mess with - which doesn't help a lot, when you're trying to deal with a complicated, expensive/under-funded & overloaded health/welfare system, that seemingly would much prefer to deal with matters that produce better looking statistics in the monthly reports...

*Yes, I am feeling more than usually cynical today.
My apologies & thanks go to those carers, who actually do care*