Thread: Still alive ha
View Single Post
 
Old Jul 13, 2018, 01:51 PM
eskielover's Avatar
eskielover eskielover is offline
Legendary Wise Elder
 
Member Since: Oct 2004
Location: Kentucky, USA
Posts: 25,086
Oh, I can relate to the pain specialists at least in this part of the country cutting ALL pain meds down to the morphine equivalent level that is MAX allowed for morphine. I went through that last year. It irritated me so much. I was using a totally non invasive patch & they were telling me I could just get a pain pump.....like OVER MY DEAD BODY!!! They had also been doing another treatment with a viscoise lidocaine solution but refused to prescribe it so I could do the treatment at home. I had a stock pile of the patches because I always stretched them to the limit. Have a friend who ended up being my GP PA & another friend who was my pharmicist (now retired). I calculated the # of patches then figured out how long I could make them last halfing the dose at each several months.

My PA friend prescribed the lidocaine so I can do the treatment at home. Just last month I finally went down all the way....without a bit of withdrawal. My pharmacist friend also researched the CBD oil (hemp oil no THC) & got me the 1800 mg eyedropper kind so when a migraine starts, just an eye dropper under the tongue works in 15 minutes. Maybe you could look into some other natural pain suppliments that might help now yiu are on the lower dose.

It is a total pain. I countered everything they told me at my last appointment. They were telling me how bad the med was for me....I had been on it almost 20 years with not one problem....so I asked what problem it was causing & EXACTLY HOW it was harming me. I said if I had taken enough OTC tylenol or ibuprophen my liver & kidneys woukd have been destroyed. So they said how bad it could be when I got older.....& I said ya, & tomorrow I coukd step off a curb & get killed by a car, so I should quit walking? After that appointment I knew I was NEVER going back. I even checked with our state rep & there were no laws about forcing this reduction. I am actually doing pretty good with taking my care into my own hands though I never had any migraines while on the dose that worked. I get them often now but at least I am now able to function.

I can totally relate to your frustration & anger
__________________


Leo's favorite place was in the passenger seat of my truck. We went everywhere together like this.
Leo my soulmate will live in my heart FOREVER Nov 1, 2002 - Dec 16, 2018
Hugs from:
*Laurie*, still_crazy
Thanks for this!
still_crazy