I'm back with an update.
It's been a very rough couple of months. As I mentioned, my wife developed debilitating post-ECT symptoms in late April after her ECT treatments finished (intense, overwhelming fear; complete disconnect from family and every aspect of her life; sensory hallucinations including a persistent smell/taste of rotten meat). I couldn't find anything that matched these symptoms online. About 2-3 weeks post-ECT though, those symptoms simply vanished one morning as if flipping a switch. One day she was terrified and unable to really function, and the next morning it was just gone and she could function again.
This was just before we had an appointment with our psychiatrist, and she put a name to it:
postictal delirium. With a
diagnosis I could Google, then I was able to find some information, mostly in medical research papers. It's extremely rare, but it's supposed to be short-term, only for a few weeks post-ECT, and then go away.
Unfortunately it came back a few weeks ago in a very disturbing way. My wife developed an intense fury at everything. The slightest thing would cause an intense, uncontrollable angry reaction. She even acknowledged when pressed that the anger was overwhelming everything in her life. She wouldn't touch me, and acted like she completely lost all of her love for me, barely interacted with her kids, threatened to walk out the door. And then, two days ago, halfway through the morning, it just... vanished.
We are completely baffled and
very worried that this is going to happen again. My wife's psychiatrist for 18 years is very old school - no computers, all handwritten notes, poor memory - and she didn't really want to hear that we were still having problems, kept saying to my wife "Well, you seem better" and sent us on our way. We're trying to get in to see a new psychiatrist but the wait time is about a year.
Has anyone heard of anything like this happening to someone more than three months post-ECT? And are there any places I can go online to get advice from trained mental health professionals that could shed some light on what the hell is happening and what we should do?