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Old Aug 10, 2018, 07:33 AM
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Blueberrybook Blueberrybook is offline
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Member Since: Oct 2017
Location: TX
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Quote:
Originally Posted by Cocosurviving View Post
Me and my daughter had earlier morning allergy appointments. We both have Angioedema and mine is worse. The doctor does not want me to take Ambien anymore. I had a colonoscopy done and there were ulcers found. The doctor said none of the meds I take would cause the ulcers. He gave me a prescription to take to try to treat the ulcers. Also my primary care doctor did blood work right before the procedure. She had her nurse call and tell me I need to do a gluten free diet. I’m going to have to take it serious because other foods are just making me sick. I went to Jimmy Johns just had a simple turkey sandwich and by the time I made it home I was sick to my stomach. I had Panera today, a turkey sandwich on wheat with soup. Then I took my younger daughter to get shoes. I had to sit jump in the shoe store and take deep breaths. My stomach was in knots.
I can tell you, definitely treat the ulcers with medication and seriously. I was also told the ulcer had nothing to do with my psych meds or my eating disorder but were caused by a combo of a bacterial infection from Heliobacter pylori and use of NSAIDs. I was taking a prescription for fibromyalgia that had an NSAID in it; I'm sure I read it with the initial facts sheet then forgot about it and thought it was not a big deal (took that medication for years) and taking Excedrin for sinus & stress headaches. I had an ulcer I didn't know about (apparently that happens occasionally), and I ended up with a perforated ulcer, hole through the stomach & duodenum, a condition that without emergency surgery is usually fatal. That surgery was the worst pain I've ever been in and the recovery brutal. Morphine did nothing to touch the pain. I hallucinated for 2-3 days straight, hopefully from the pain & the medication as hallucinations have never been a part of my bipolar issues. It was much worse than childbirth because when you have a baby, you know they will not let you go more than 24 hours before intervening. But the doctors couldn't tell me when I would feel less pain (it was gradual, around 3 weeks post-op) or be back to normal. Foods tasted weird, and I lost a lot of weight even though I was a normal weight to begin with. They said if the ulcer had been treated, I would have never needed the surgery, and that this surgery is now rare in the U.S. I am sure the trauma surgeons and consulting gastroenterologist are busy writing up a paper to publish in some medical journal as they had to use a non-standard part of fat or of my body to close the ulcer because of lack of fat in the usual area, or maybe it's just paranoia. I also ended up with a giant pile of medical bills. I made payment plans with the largest costs, and it will take me 9 years to pay off the hospital bill, paying $65 a month.

I have never been on a gluten-free diet, but my youngest sister had to go on one at the end of her 3rd pregnancy; I don't remember why exactly. It was a couple of months though, and she said it was the hardest dietary restriction she has ever had to follow. She once went on a dairy restriction because she wasn't sure if milk was causing issues with breastfeeding her 2nd baby. Though once you get used to a gluten-free diet, I think it might not be so bad. During the evacuation for hurricane Harvey, we stayed with a woman in her early '70s deep in the Texas Hill Country who lived gluten-free just because she felt it was better overall for her health and had been doing it for years and seemed happy and well enough, actually quite vigorous, going for 45 minute walks 5-6 days a week, hosting Bible studies twice a week, taking us on local tours around her town, which had a lot of pretty undeveloped landscapes and a wonderful park with so much playground equipment that my daughter loved. I was actually very sad to leave her even though we only met because of the evacuation; she had been a bridesmaid in my mother-in-law's wedding and moved from California to Texas, which is how we ended up staying with her. My mother-in-law asked her.
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD

Seroquel, Cymbalta, propanolol, buspirone, Trazodone, gabapentin, lamotrigine, hydroxyzine,

There's a crack in everything. That is how the light gets in.
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