I know it's scarry....I did go to the link you provided to read a bit. The really good thing is that it's recognized....this is a very good thing...you can't treat what you don't know & you can't learn to take care of yourself if you don't know what you are dealing with.

It's good to know also that it's something & "NOT ALL IN YOUR HEAD"....I know I hated it when I was sick & they couldn't figure out what it was.....than it was all in your head....yes, the migraines were in my head.....but I wasn't making it up.

Having the medical worlds support with this should help you much more you can even imagine.

I'm happy that they are finding out....even if it took more testing than tests you have taken in school.....I can relate to that....lol.

I am sad that you have to deal with this frightening situation that your body is in right now...but know that they will take care of you.


Debbie