On my way to IP I felt that I stopped time. I told my husband I needed some air so he stopped on the side of the highway. It was cold and late and windy. The stars were shining so brightly and the cold wind was whirling my hair around above me and it was just like this little piece of perfect space and time.

Eventually he got out of the car to make me get back in but it was amazing while it lasted. When those moments happen at night now I still get a lot joy out of them and stop to really take it in but dont feel like I have stopped time.

How hard was it to accept your diagnosis/have you?